AutomedicationFrancoV1, Main, Exploration, bibRecord, 000094

The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.

Identifieur interne : 000094 ( Main/Exploration ); précédent : 000093; suivant : 000095

The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.

Auteurs : Anne Brédart [France] ; Amélie Anota [France] ; Julia Dick [Allemagne] ; Alejandra Cano [Espagne] ; Antoine De Pauw [France] ; Jean-Luc Kop [France] ; Neil K. Aaronson [Pays-Bas] ; Eveline M. Bleiker [Pays-Bas] ; Joan Brunet [Espagne] ; Peter Devilee [Pays-Bas] ; Dominique Stoppa-Lyonnet [France] ; Rita Schmutzler [Allemagne] ; Sylvie Dolbeault [France]

Source :

European journal of cancer care [ 1365-2354 ] ; 2020.

RBID : pubmed:31571365

Descripteurs français

English descriptors

Abstract

BACKGROUND

We performed a comprehensive assessment of the psychometrics of the "Psychosocial Aspects in Hereditary Cancer" (PAHC) questionnaire in French, German and Spanish.

METHODS

Women consecutively approached in Cancer Genetic Clinics completed the PAHC, distress and satisfaction questionnaires at pre-testing (T1) and after test result disclosure (T2). In addition to standard psychometric attributes, we assessed the PAHC ability to respond to change (i.e. improvement or deterioration from T1 to T2) in perceived difficulties and computed minimal important differences (MID) in PAHC scores as compared with self-reported needs for additional counselling.

RESULTS

Of 738 eligible counselees, 214 (90%) in France (Paris), 301 (92%) in Germany (Cologne) and 133 (77%) in Spain (Barcelona) completed the PAHC. A six-factor revised PAHC model yielded acceptable CFA goodness-of-fit indexes and good all scales internal consistencies. PAHC scales demonstrated expected conceptual differences with distress and satisfaction with counselling. Different levels of psychosocial difficulties were evidenced between counselees' subgroups and over time (p-values < .05). MID estimates ranged from 8 to 15 for improvement and 9 to 21 for deterioration.

CONCLUSION

The PAHC French, German and Spanish versions are reliable and valid for evaluating the psychosocial difficulties of women at high BC risk attending genetic clinics.

DOI: 10.1111/ecc.13173
PubMed: 31571365

Affiliations:

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<author><name sortKey="Devilee, Peter" sort="Devilee, Peter" uniqKey="Devilee P" first="Peter" last="Devilee">Peter Devilee</name>
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<sourceDesc><biblStruct><analytic><title xml:lang="en">The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.</title>
<author><name sortKey="Bredart, Anne" sort="Bredart, Anne" uniqKey="Bredart A" first="Anne" last="Brédart">Anne Brédart</name>
<affiliation wicri:level="3"><nlm:affiliation>Supportive Care Department, Psycho-oncology Unit, Psychopathology and Health Process Laboratory, EA 4047, Psychology Institute, Institut Curie, University Paris Descartes, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
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<country xml:lang="fr">France</country>
<wicri:regionArea>Methodology and Quality of Life in Oncology unit (INSERM UMR 1098), University Hospital of Besançon and French National Platform Quality of Life and Cancer, Besançon</wicri:regionArea>
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<country xml:lang="fr">Allemagne</country>
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<author><name sortKey="De Pauw, Antoine" sort="De Pauw, Antoine" uniqKey="De Pauw A" first="Antoine" last="De Pauw">Antoine De Pauw</name>
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<country xml:lang="fr">France</country>
<wicri:regionArea>Institut Curie, Cancer Genetic Clinic, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
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<author><name sortKey="Kop, Jean Luc" sort="Kop, Jean Luc" uniqKey="Kop J" first="Jean-Luc" last="Kop">Jean-Luc Kop</name>
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<country xml:lang="fr">France</country>
<wicri:regionArea>Université de Lorraine, 2LPN (CEMA), Nancy</wicri:regionArea>
<placeName><region type="region">Grand Est</region>
<region type="old region">Lorraine (région)</region>
<settlement type="city">Nancy</settlement>
</placeName>
<orgName type="university">Université de Lorraine</orgName>
</affiliation>
</author>
<author><name sortKey="Aaronson, Neil K" sort="Aaronson, Neil K" uniqKey="Aaronson N" first="Neil K" last="Aaronson">Neil K. Aaronson</name>
<affiliation wicri:level="3"><nlm:affiliation>Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands.</nlm:affiliation>
<country xml:lang="fr">Pays-Bas</country>
<wicri:regionArea>Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam</wicri:regionArea>
<placeName><settlement type="city">Amsterdam</settlement>
<region nuts="2" type="province">Hollande-Septentrionale</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Bleiker, Eveline M" sort="Bleiker, Eveline M" uniqKey="Bleiker E" first="Eveline M" last="Bleiker">Eveline M. Bleiker</name>
<affiliation wicri:level="3"><nlm:affiliation>Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands.</nlm:affiliation>
<country xml:lang="fr">Pays-Bas</country>
<wicri:regionArea>Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam</wicri:regionArea>
<placeName><settlement type="city">Amsterdam</settlement>
<region nuts="2" type="province">Hollande-Septentrionale</region>
</placeName>
</affiliation>
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<author><name sortKey="Brunet, Joan" sort="Brunet, Joan" uniqKey="Brunet J" first="Joan" last="Brunet">Joan Brunet</name>
<affiliation wicri:level="3"><nlm:affiliation>Catalan Institute of Oncology, Barcelona, Spain.</nlm:affiliation>
<country xml:lang="fr">Espagne</country>
<wicri:regionArea>Catalan Institute of Oncology, Barcelona</wicri:regionArea>
<placeName><settlement type="city">Barcelone</settlement>
<region nuts="2" type="region">Catalogne</region>
</placeName>
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<author><name sortKey="Devilee, Peter" sort="Devilee, Peter" uniqKey="Devilee P" first="Peter" last="Devilee">Peter Devilee</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Human Genetics & Division of Pathology, Leiden University Medical Center, Leiden, The Netherlands.</nlm:affiliation>
<country xml:lang="fr">Pays-Bas</country>
<wicri:regionArea>Department of Human Genetics & Division of Pathology, Leiden University Medical Center, Leiden</wicri:regionArea>
<placeName><settlement type="city">Leyde</settlement>
<region nuts="2" type="province">Hollande-Méridionale</region>
</placeName>
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<author><name sortKey="Stoppa Lyonnet, Dominique" sort="Stoppa Lyonnet, Dominique" uniqKey="Stoppa Lyonnet D" first="Dominique" last="Stoppa-Lyonnet">Dominique Stoppa-Lyonnet</name>
<affiliation wicri:level="3"><nlm:affiliation>Institut Curie, Cancer Genetic Clinic, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Institut Curie, Cancer Genetic Clinic, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Schmutzler, Rita" sort="Schmutzler, Rita" uniqKey="Schmutzler R" first="Rita" last="Schmutzler">Rita Schmutzler</name>
<affiliation wicri:level="1"><nlm:affiliation>Center for Familial Breast and Ovarian Cancer, Center for Integrated Oncology (CIO), University of Cologne, Faculty of Medicine and University Hospital Cologne, Cologne, Germany.</nlm:affiliation>
<country xml:lang="fr">Allemagne</country>
<wicri:regionArea>Center for Familial Breast and Ovarian Cancer, Center for Integrated Oncology (CIO), University of Cologne, Faculty of Medicine and University Hospital Cologne, Cologne</wicri:regionArea>
<wicri:noRegion>Cologne</wicri:noRegion>
<wicri:noRegion>Cologne</wicri:noRegion>
<wicri:noRegion>Cologne</wicri:noRegion>
</affiliation>
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<author><name sortKey="Dolbeault, Sylvie" sort="Dolbeault, Sylvie" uniqKey="Dolbeault S" first="Sylvie" last="Dolbeault">Sylvie Dolbeault</name>
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<country xml:lang="fr">France</country>
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<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent (MeSH)</term>
<term>Adult (MeSH)</term>
<term>Aged (MeSH)</term>
<term>Aged, 80 and over (MeSH)</term>
<term>Breast Neoplasms (genetics)</term>
<term>Breast Neoplasms (psychology)</term>
<term>Factor Analysis, Statistical (MeSH)</term>
<term>Female (MeSH)</term>
<term>France (MeSH)</term>
<term>Genetic Counseling (psychology)</term>
<term>Genetic Predisposition to Disease (psychology)</term>
<term>Genetic Testing (MeSH)</term>
<term>Germany (MeSH)</term>
<term>Hereditary Breast and Ovarian Cancer Syndrome (psychology)</term>
<term>Humans (MeSH)</term>
<term>Middle Aged (MeSH)</term>
<term>Minimal Clinically Important Difference (MeSH)</term>
<term>Needs Assessment (MeSH)</term>
<term>Psychological Distress (MeSH)</term>
<term>Psychometrics (MeSH)</term>
<term>Reproducibility of Results (MeSH)</term>
<term>Spain (MeSH)</term>
<term>Surveys and Questionnaires (MeSH)</term>
<term>Translations (MeSH)</term>
<term>Young Adult (MeSH)</term>
</keywords>
<keywords scheme="KwdFr" xml:lang="fr"><term>Adolescent (MeSH)</term>
<term>Adulte (MeSH)</term>
<term>Adulte d'âge moyen (MeSH)</term>
<term>Allemagne (MeSH)</term>
<term>Analyse statistique factorielle (MeSH)</term>
<term>Conseil génétique (psychologie)</term>
<term>Différence minimale cliniquement importante (MeSH)</term>
<term>Dépistage génétique (MeSH)</term>
<term>Enquêtes et questionnaires (MeSH)</term>
<term>Espagne (MeSH)</term>
<term>Femelle (MeSH)</term>
<term>France (MeSH)</term>
<term>Humains (MeSH)</term>
<term>Jeune adulte (MeSH)</term>
<term>Prédisposition génétique à une maladie (psychologie)</term>
<term>Psychométrie (MeSH)</term>
<term>Reproductibilité des résultats (MeSH)</term>
<term>Sujet âgé (MeSH)</term>
<term>Sujet âgé de 80 ans ou plus (MeSH)</term>
<term>Syndrome héréditaire de cancer du sein et de l'ovaire (psychologie)</term>
<term>Traductions (MeSH)</term>
<term>Tumeurs du sein (génétique)</term>
<term>Tumeurs du sein (psychologie)</term>
<term>Évaluation des besoins (MeSH)</term>
</keywords>
<keywords scheme="MESH" type="geographic" xml:lang="en"><term>France</term>
<term>Germany</term>
<term>Spain</term>
</keywords>
<keywords scheme="MESH" qualifier="genetics" xml:lang="en"><term>Breast Neoplasms</term>
</keywords>
<keywords scheme="MESH" qualifier="génétique" xml:lang="fr"><term>Tumeurs du sein</term>
</keywords>
<keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Conseil génétique</term>
<term>Prédisposition génétique à une maladie</term>
<term>Syndrome héréditaire de cancer du sein et de l'ovaire</term>
<term>Tumeurs du sein</term>
</keywords>
<keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Breast Neoplasms</term>
<term>Genetic Counseling</term>
<term>Genetic Predisposition to Disease</term>
<term>Hereditary Breast and Ovarian Cancer Syndrome</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Adolescent</term>
<term>Adult</term>
<term>Aged</term>
<term>Aged, 80 and over</term>
<term>Factor Analysis, Statistical</term>
<term>Female</term>
<term>Genetic Testing</term>
<term>Humans</term>
<term>Middle Aged</term>
<term>Minimal Clinically Important Difference</term>
<term>Needs Assessment</term>
<term>Psychological Distress</term>
<term>Psychometrics</term>
<term>Reproducibility of Results</term>
<term>Surveys and Questionnaires</term>
<term>Translations</term>
<term>Young Adult</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term>
<term>Adulte</term>
<term>Adulte d'âge moyen</term>
<term>Allemagne</term>
<term>Analyse statistique factorielle</term>
<term>Différence minimale cliniquement importante</term>
<term>Dépistage génétique</term>
<term>Enquêtes et questionnaires</term>
<term>Espagne</term>
<term>Femelle</term>
<term>France</term>
<term>Humains</term>
<term>Jeune adulte</term>
<term>Psychométrie</term>
<term>Reproductibilité des résultats</term>
<term>Sujet âgé</term>
<term>Sujet âgé de 80 ans ou plus</term>
<term>Traductions</term>
<term>Évaluation des besoins</term>
</keywords>
<keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>France</term>
<term>Allemagne</term>
<term>Espagne</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en"><p><b>BACKGROUND</b>
</p>
<p>We performed a comprehensive assessment of the psychometrics of the "Psychosocial Aspects in Hereditary Cancer" (PAHC) questionnaire in French, German and Spanish.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>METHODS</b>
</p>
<p>Women consecutively approached in Cancer Genetic Clinics completed the PAHC, distress and satisfaction questionnaires at pre-testing (T1) and after test result disclosure (T2). In addition to standard psychometric attributes, we assessed the PAHC ability to respond to change (i.e. improvement or deterioration from T1 to T2) in perceived difficulties and computed minimal important differences (MID) in PAHC scores as compared with self-reported needs for additional counselling.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>RESULTS</b>
</p>
<p>Of 738 eligible counselees, 214 (90%) in France (Paris), 301 (92%) in Germany (Cologne) and 133 (77%) in Spain (Barcelona) completed the PAHC. A six-factor revised PAHC model yielded acceptable CFA goodness-of-fit indexes and good all scales internal consistencies. PAHC scales demonstrated expected conceptual differences with distress and satisfaction with counselling. Different levels of psychosocial difficulties were evidenced between counselees' subgroups and over time (p-values < .05). MID estimates ranged from 8 to 15 for improvement and 9 to 21 for deterioration.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>CONCLUSION</b>
</p>
<p>The PAHC French, German and Spanish versions are reliable and valid for evaluating the psychosocial difficulties of women at high BC risk attending genetic clinics.</p>
</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">31571365</PMID>
<DateCompleted><Year>2020</Year>
<Month>11</Month>
<Day>16</Day>
</DateCompleted>
<DateRevised><Year>2020</Year>
<Month>11</Month>
<Day>16</Day>
</DateRevised>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1365-2354</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>29</Volume>
<Issue>1</Issue>
<PubDate><Year>2020</Year>
<Month>Jan</Month>
</PubDate>
</JournalIssue>
<Title>European journal of cancer care</Title>
<ISOAbbreviation>Eur J Cancer Care (Engl)</ISOAbbreviation>
</Journal>
<ArticleTitle>The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.</ArticleTitle>
<Pagination><MedlinePgn>e13173</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1111/ecc.13173</ELocationID>
<Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">We performed a comprehensive assessment of the psychometrics of the "Psychosocial Aspects in Hereditary Cancer" (PAHC) questionnaire in French, German and Spanish.</AbstractText>
<AbstractText Label="METHODS" NlmCategory="METHODS">Women consecutively approached in Cancer Genetic Clinics completed the PAHC, distress and satisfaction questionnaires at pre-testing (T1) and after test result disclosure (T2). In addition to standard psychometric attributes, we assessed the PAHC ability to respond to change (i.e. improvement or deterioration from T1 to T2) in perceived difficulties and computed minimal important differences (MID) in PAHC scores as compared with self-reported needs for additional counselling.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">Of 738 eligible counselees, 214 (90%) in France (Paris), 301 (92%) in Germany (Cologne) and 133 (77%) in Spain (Barcelona) completed the PAHC. A six-factor revised PAHC model yielded acceptable CFA goodness-of-fit indexes and good all scales internal consistencies. PAHC scales demonstrated expected conceptual differences with distress and satisfaction with counselling. Different levels of psychosocial difficulties were evidenced between counselees' subgroups and over time (p-values < .05). MID estimates ranged from 8 to 15 for improvement and 9 to 21 for deterioration.</AbstractText>
<AbstractText Label="CONCLUSION" NlmCategory="CONCLUSIONS">The PAHC French, German and Spanish versions are reliable and valid for evaluating the psychosocial difficulties of women at high BC risk attending genetic clinics.</AbstractText>
<CopyrightInformation>© 2019 John Wiley & Sons Ltd.</CopyrightInformation>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Brédart</LastName>
<ForeName>Anne</ForeName>
<Initials>A</Initials>
<Identifier Source="ORCID">https://orcid.org/0000-0002-1864-5371</Identifier>
<AffiliationInfo><Affiliation>Supportive Care Department, Psycho-oncology Unit, Psychopathology and Health Process Laboratory, EA 4047, Psychology Institute, Institut Curie, University Paris Descartes, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Anota</LastName>
<ForeName>Amélie</ForeName>
<Initials>A</Initials>
<Identifier Source="ORCID">https://orcid.org/0000-0001-6896-1367</Identifier>
<AffiliationInfo><Affiliation>Methodology and Quality of Life in Oncology unit (INSERM UMR 1098), University Hospital of Besançon and French National Platform Quality of Life and Cancer, Besançon, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Dick</LastName>
<ForeName>Julia</ForeName>
<Initials>J</Initials>
<AffiliationInfo><Affiliation>Center for Familial Breast and Ovarian Cancer, Center for Integrated Oncology (CIO), University of Cologne, Faculty of Medicine and University Hospital Cologne, Cologne, Germany.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Cano</LastName>
<ForeName>Alejandra</ForeName>
<Initials>A</Initials>
<AffiliationInfo><Affiliation>Clinical and Health Psychology Department, University Autónoma of Barcelona, Barcelona, Spain.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>De Pauw</LastName>
<ForeName>Antoine</ForeName>
<Initials>A</Initials>
<AffiliationInfo><Affiliation>Institut Curie, Cancer Genetic Clinic, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Kop</LastName>
<ForeName>Jean-Luc</ForeName>
<Initials>JL</Initials>
<AffiliationInfo><Affiliation>Université de Lorraine, 2LPN (CEMA), Nancy, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Aaronson</LastName>
<ForeName>Neil K</ForeName>
<Initials>NK</Initials>
<Identifier Source="ORCID">https://orcid.org/0000-0003-2574-4850</Identifier>
<AffiliationInfo><Affiliation>Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Bleiker</LastName>
<ForeName>Eveline M</ForeName>
<Initials>EM</Initials>
<Identifier Source="ORCID">https://orcid.org/0000-0003-4357-949X</Identifier>
<AffiliationInfo><Affiliation>Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, The Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Brunet</LastName>
<ForeName>Joan</ForeName>
<Initials>J</Initials>
<AffiliationInfo><Affiliation>Catalan Institute of Oncology, Barcelona, Spain.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Devilee</LastName>
<ForeName>Peter</ForeName>
<Initials>P</Initials>
<AffiliationInfo><Affiliation>Department of Human Genetics & Division of Pathology, Leiden University Medical Center, Leiden, The Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Stoppa-Lyonnet</LastName>
<ForeName>Dominique</ForeName>
<Initials>D</Initials>
<AffiliationInfo><Affiliation>Institut Curie, Cancer Genetic Clinic, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Schmutzler</LastName>
<ForeName>Rita</ForeName>
<Initials>R</Initials>
<AffiliationInfo><Affiliation>Center for Familial Breast and Ovarian Cancer, Center for Integrated Oncology (CIO), University of Cologne, Faculty of Medicine and University Hospital Cologne, Cologne, Germany.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Dolbeault</LastName>
<ForeName>Sylvie</ForeName>
<Initials>S</Initials>
<Identifier Source="ORCID">https://orcid.org/0000-0003-4363-2502</Identifier>
<AffiliationInfo><Affiliation>Institut Curie, Supportive Care Department, Psycho-oncology Unit, Paris and CESP, University Paris-Sud, UVSQ, INSERM, University Paris-Saclay, Villejuif, France.</Affiliation>
</AffiliationInfo>
</Author>
</AuthorList>
<Language>eng</Language>
<GrantList CompleteYN="Y"><Grant><GrantID>634935</GrantID>
<Agency>European Union Horizon 2020</Agency>
<Country></Country>
</Grant>
</GrantList>
<PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType>
<PublicationType UI="D023361">Validation Study</PublicationType>
</PublicationTypeList>
<ArticleDate DateType="Electronic"><Year>2019</Year>
<Month>09</Month>
<Day>30</Day>
</ArticleDate>
</Article>
<MedlineJournalInfo><Country>England</Country>
<MedlineTA>Eur J Cancer Care (Engl)</MedlineTA>
<NlmUniqueID>9301979</NlmUniqueID>
<ISSNLinking>0961-5423</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>N</CitationSubset>
<MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000368" MajorTopicYN="N">Aged</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000369" MajorTopicYN="N">Aged, 80 and over</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D001943" MajorTopicYN="N">Breast Neoplasms</DescriptorName>
<QualifierName UI="Q000235" MajorTopicYN="N">genetics</QualifierName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005163" MajorTopicYN="N">Factor Analysis, Statistical</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005602" MajorTopicYN="N" Type="Geographic">France</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005817" MajorTopicYN="N">Genetic Counseling</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D020022" MajorTopicYN="N">Genetic Predisposition to Disease</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005820" MajorTopicYN="N">Genetic Testing</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005858" MajorTopicYN="N" Type="Geographic">Germany</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D061325" MajorTopicYN="N">Hereditary Breast and Ovarian Cancer Syndrome</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000071081" MajorTopicYN="N">Minimal Clinically Important Difference</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D020380" MajorTopicYN="N">Needs Assessment</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000079225" MajorTopicYN="Y">Psychological Distress</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D011594" MajorTopicYN="N">Psychometrics</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D015203" MajorTopicYN="N">Reproducibility of Results</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D013030" MajorTopicYN="N" Type="Geographic">Spain</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D014177" MajorTopicYN="N">Translations</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D055815" MajorTopicYN="N">Young Adult</DescriptorName>
</MeshHeading>
</MeshHeadingList>
<KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">breast cancer</Keyword>
<Keyword MajorTopicYN="N">cross-cultural</Keyword>
<Keyword MajorTopicYN="N">genetics</Keyword>
<Keyword MajorTopicYN="N">minimal important difference</Keyword>
<Keyword MajorTopicYN="N">psychometrics</Keyword>
</KeywordList>
</MedlineCitation>
<PubmedData><History><PubMedPubDate PubStatus="received"><Year>2018</Year>
<Month>12</Month>
<Day>13</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="revised"><Year>2019</Year>
<Month>05</Month>
<Day>23</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="accepted"><Year>2019</Year>
<Month>09</Month>
<Day>04</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="pubmed"><Year>2019</Year>
<Month>10</Month>
<Day>2</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="medline"><Year>2020</Year>
<Month>11</Month>
<Day>18</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="entrez"><Year>2019</Year>
<Month>10</Month>
<Day>2</Day>
<Hour>6</Hour>
<Minute>0</Minute>
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<PublicationStatus>ppublish</PublicationStatus>
<ArticleIdList><ArticleId IdType="pubmed">31571365</ArticleId>
<ArticleId IdType="doi">10.1111/ecc.13173</ArticleId>
</ArticleIdList>
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<Reference><Citation>van Roosmalen, M. S., Stalmeier, P. F. M., Verhoef, L. C. G., Hoekstra-Weebers, J. E. H. M., Oosterwijk, J. C., Hoogerbrugge, N., … van Daal, W. A. J. (2004). Randomised trial of a decision aid and its timing for women being tested for a BRCA1/2 mutation. British Journal of Cancer, 90(2), 333-342. https://doi.org/10.1038/sj.bjc.6601525</Citation>
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The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.

The "Psychosocial Aspects in Hereditary Cancer" questionnaire in women attending breast cancer genetic clinics: Psychometric validation across French-, German- and Spanish-language versions.

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